The doctors weren’t joking when they said kids heal faster at home. From the moment we stepped in the door, he’s been so much better! He slept 13 hours last night (can I get an amen?! 🙌🏽) He woke up with the swelling mostly gone and able to peek open both eyes. He’s been stumbling around climbing on things already today 🙄😑 Your prayers have been felt and answered friends, thank you. Our boy is SO much better and we are so thankful to be through the worst of this!!!! #kendrickdjames#craniosynostosis#skullsurgery
Just in total shock. Look at this head shape!! #craniosynostosis we’re seeing the baby he was always meant to be. More smiling. Ears sticking out more (like dada! 💁🏻♂️ haha) Babbling lots. Sleepin sounder.
Today we get to go home & I couldn’t be happier for my strong little princess! For anyone who has no idea that Craniosynostosis exist here is some info. There are so many things we don’t know and I believe people should be aware of this condition because 1 in every 2,500 kids is born with this condition it may not seem like a lot to you but remember how many kids are born every hr? ALOT. #spreadingawareness#craniosynostosis#mycraniobaby#septemberisawarenessmonth💜
Day 4: Doing so much better! He is finally eating a little, talking some and we’ve seen a few smiles! So thankful to see him starting to slowly bounce back. We are all ready for the swelling to go away and those beautiful brown eyes to open up. So happy to be through the worst of this and anxious to have our wild and crazy boy back! #kendrickdjames#craniosynostosis#craniowarrior#skullsurgery
Don't you feel so helpless when your child is sick? My stomach churns and I get palpitations in my chest until I know they're OK... even then, I'm still watching them like a hawk .
I found it very difficult to make the decision for Owens corrective surgery, in fact, I got quite angry with my husband for suggesting the possibility. How could I willingly offer up my child for elective surgery especially one that was so invasive? He seemed fine. His head had an unusual shape .. but no different to his Dads.
When he heard the words Saggital Craniosynostosis, the googling began ! For the first time we saw babies, children and adults with the same shaped head. Owen was 6years old, he should have been diagnosed after birth.
Unfortunately, not many medical professionals are aware of craniosynostosis. Including the team in Special care unit where my son spent the first 2 weeks of his life. My Obstetrician, family Gp, Health nurses, hospital staff. So many medical professionals who were in close contact with my son and didn't recognize it..... #craniosynostosis#cranio#unaware#ignorant#educate#inform#raiseawareness#cranioribbonsireland#purpleribbon
I’ve fallen in love with the shape of her head and these are the last 11 days before her skull changes. For over six months I’ve stared wondrously at this little girl, totally in love, and I’m scared of changing it. She may always be my woppy head, but it’ll be a different woppy head that God graced her with and I’ll miss it. But I pray for good results and only two surgeries 🙏🏼🤞🏼 #craniowarrior#craniosynostosis#cranio
We are busting out of here!!! The doctors said he would recover much better at home so we are more than happy to go. He’s still running a fever and super swollen, but that should get better over the next few days. We can’t say enough about our doctors, nurses and the entire staff at Medical City Dallas Children’s Hospital. Dr. Hobar and Sawvel were brilliant and treated our boy with such care that we never worried about him in their hands. We still have a rough week ahead as he recovers, but he’s such a warrior!! Thank you for all the messages, comments, prayers, gift cards and everything that helped along the way. We feel so loved and cared for! #kendrickdjames#craniosynostosis#craniowarrior#skullsurgery
#tbt We are a CHOP Family! @childrensphila .
Back in January, Andrew had his first annual check up with his surgeon. As you can read from Dr. Bartlett’s letter, it went very well. We understand we are NOT completely out of the woods yet but we are “headed” in the right direction. (No pun intended). .
We can’t thank CHOP enough for their amazing work on helping our little Bean man live a normal life! We share his story for multiple reasons but one is to spread the word about craniosynostosis and making sure parents are checking their child’s head for deformities. Although this condition is rare (1 out of 2000 births), we need to make sure we are checking. If caught early, your child can live a normal life without complications. Thank God for Paoli hospital’s pediatrician for diagnosing him on the day he was born or we could have been down a different path. .
Bottom line...be grateful for your your life. Be grateful that you have friends and family that care for you. Be grateful that God had chosen you to make a difference in this world. Be kind. Be you.
Kendrick was a trooper today. He is fighting through a really high fever and has been amazing. His eyes are swollen shut so he’s confused but likes having his familiar things near (like listening to his girlfriend Moana sing and driving trucks on his belly 🚚) We are out of the ICU and in a regular room now and praying tomorrow is an even better day! Keep those prayers coming, we feel them!! #kendrickdjames#craniosynostosis#craniowarrior#skullsurgery#cranio